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Deb's Story

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Deb's Story(Doug's my youngest son)

10 things I love about Doug 

  • he's got self-control
  • he sees things in films most people wouldn't notice
  • he's accepted by the community as a regular guy
  • he doesn't call out to me in the night as much as he needs to
  • he tries to do everything for himself first
  • he comes to art house films with me
  • he makes everyone laugh
  • he  studies hard
  • he gives back to the community as much as he can
  • he never lets me see any regret for what might have been
10 things I hate about Doug
 
  • he tries to do everything for himself first
  • he's always sure he's right
  • he mimics me
  • he doesn't answer my text messages,  late at night out on the town
  • he doesn't call out to me in the night as much as he needs to
  • he was born at the wrong time, missing out on early intervention and a little more strength
  • he stays up too late at night watching SBS
  • he's too proud to wear his chest harness or orthotics in the light of day
  • he never wants to do his stretches and exercises
  • he never asks for a cure for Duchenne
 
10 hopes I have for Doug
 
  • he finds another girlfriend
  • he gets to be 30 or 40yrs old
  • he writes a play and performs it or directs it
  • he doesn't get any weaker
  • he never has another chest infection
  • he wants to travel a little
  • his unborn nieces and nephews get to know him
  • he stays upbeat
  • he keeps ignoring my text messages late at night
  • he buries me first
WIth apologies to Doug (where else was I going to get 20yrs worth of photos) this video story (below) is the story of countless youths who didn't make it as far as Doug.

 

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Ó Duchenne Foundation  2008

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