Sponsorship and Exhibitor Information
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What can we acheive together in Sydney?
We aim to provide sound medical and scientific information to reassure parents that whilst there is no one size fits all miracle cure for each disorder, the future is going to be much better for many of our children. We know that world standards of care are changing every year via new drug therapies, practices and research findings and it is critical that we keep abreast of new information.
The conference aims to:
To bring families affected by Duchenne and other common neuromuscular disorders together to update world standards of care and research progress - firsthand, rather than in a diluted or technical written form
To focus on the most common without neglecting other major neuromuscular diseases
To encourage Australian medical specialists, doctors and therapists to grow in their proactive approach to the diagnosis and treatment of persons affected by neuromuscular diseases reducing surgical interventions and hospitalizations.
Increased awareness of the positive outcomes of such proactivity should eventually encourage more specialists and therapists into the field and it is not uncommon to register a number of medical & allied health students seeking accreditation.
To address family, cognitive, social, psychological and palliative care issues to reinforce that quality of life is more important than quantity of life
Everyone, particularly delegates who are disabled, will contribute more to society
Greater overall quantity and quality of life for all.
